When you are the 1%, not in a good way.

So yesterday marked another confusing and frustrating day in this IVF journey. I had an appointment with my specialist yesterday afternoon to see where my lining was at and if we will be able to go ahead with a transfer next week. I had been on the highest dose of Progynova (Oestrogen) and yet my body was still not responding to it. Apparently 99% of women do and I am in the lucky 1% that doesn’t. Ultimately that means our Frozen Embryo Transfer (FET) cycle has been cancelled and I am no closer to being pregnant.

It doesn’t make you feel great when your specialist then phones the head of the IVF clinic to work out what to do next. I appreciate the fact he is trying to do everything he can to help me but you feel pretty shit knowing you are that unusual in your presentation, not even a fertility specialist knows how to help you. After some conversation between the ‘experts’ it was decided the best course of action is another full stimulation cycle. Yes that means another full cycle of injections and egg pick up etc,  with slightly different meds to what I have had before. This will not only potentially give us some more embryos to work with but also give us a greater chance of thickening my lining. Apparently Follicle Stimulating Hormone (FSH) when used in conjunction with the Oestrogen patches will give us the best chance of a pregnancy. The specialist kindly offered to do the cycle at a cheaper rate given our situation and not being able to do a FET.

I really don’t know how to feel at this point. I had a cry and I think it was just out of frustration more than anything. It feels unfair that everyone around me seems to be falling pregnant so easily, plus celebrities announcing pregnancies every second day. Including Serena Williams yesterday, who somehow managed to win the Australian Open while pregnant and yet I’m taking all these drugs, doing everything right and my body still won’t come to the party. I feel thankful for the opportunity to do another stim cycle at a reduced cost as this will be a huge help, and thankful for the possibility to perhaps collect a few more eggs and hopefully embryos along the way. But all of these things still keep pushing back my dreams and knowing we have another Mothers Day coming up in May and we are still not pregnant just makes it all a bit harder to take.

18 months into this journey and I know many people have battled a lot longer than we have, but I could have had 2 full pregnancies in that time too! My mind constantly flips backwards and forwards between thankful we live in a time and place where IVF is available and we are fortunate enough to afford it. And so frustrated that we have to do it in the first place. I so wish we never had to be here and this blog never had to exist. If things went the way we had planned we should be holding our son or daughter by now. Even writing those words feels strange. All we get to think about at this stage is eggs and embryos.

The ride continues. I’m sure one day I will look back on this and be holding a son or daughter, explaining to them how much love and hard work bought them into the world. But for the moment I am sad and frustrated that they are still just a hope in their parent’s hearts.

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2 thoughts on “When you are the 1%, not in a good way.

  1. I understand how you feel. I’ve been on this journey for the last two years too. I have ups and downs. Sometimes I accept and understand that I just need to take care of my body and sometimes no amount of consoling myself works. I just want to give you a virtual hug and ask you to keep pushing yourself and not let negative thoughts take over your life. I am hoping you get to hold your baby soon just as I pray that I will be able to do the same someday too and wouldn’t they be the most adored and loved children on earth? 😀 🙂 Much love and strength to you.

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    1. Thanks so much for your comment addra. It helps so much knowing someone else out there gets it and knows what we are going through. I try to focus on the positives but every now and then the negatives win. Sending a big virtual hug to you too and it really means so much. Thank you. I hope you get your little miracle sooner rather than later. When I get bad news I find enjoying a glass of wine and some cheese helps as I won’t be able to enjoy that pleasure once I am pregnant. Sending big love your way too. x

      Liked by 1 person

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